SIIRG at Stanford University conducts many clinical trials with the goal of providing safe and effective treatment therapies for a number of diseases
UNDERSTANDING and MEASURING ITCH in PATIENTS with EPIDERMOLYSIS BULLOSA
Study Objectives & Details: The purpose of this study is to evaluate the ability of currently available instruments to measure itch (also known as pruritus) and its impact on quality of life (QoL) domains important to patients with Epidermolysis Bullosa (EB). This study will also evaluate how well currently available surveys measure itch.
This is an interview study where participants will be asked to answer questions about their experiences with itch and the impact of itch on quality of life.
Enrollment: This study is active and currently enrolling.
How to participate: For more information, call (650) 441-9974
Who can participate: Study is open to patients with EB with itch for more than 6 months.
Age Range: 13 years of age or older.
Gender: Any
Study Locations: Interviews may be conducted via Zoom (HIPAA-complaint telemedicine) by phone or in person at Stanford Hospital and Clinics located in Palo Alto and/or Redwood City, California.
Principal Investigator: Dr. Albert Chiou
Participant's rights questions, contact 1-866-680-2906
Clinical Trial Contact Form
Our studies include a wide range of patients, representing a diverse group of ages, ethnicities and socioeconomic backgrounds. Our Program offers equal opportunity to all persons, so long as they are eligible based on study eligibility criteria.